The Resource Privacy, confidentiality, and health research, William W. Lowrance
Privacy, confidentiality, and health research, William W. Lowrance
Resource Information
The item Privacy, confidentiality, and health research, William W. Lowrance represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in Biddle Law Library - University of Pennsylvania Law School.This item is available to borrow from 1 library branch.
Resource Information
The item Privacy, confidentiality, and health research, William W. Lowrance represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in Biddle Law Library - University of Pennsylvania Law School.
This item is available to borrow from 1 library branch.
- Summary
- The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward
- Language
- eng
- Extent
- 1 online resource (xiv, 188 pages)
- Note
- Title from publisher's bibliographic system (viewed on 05 Oct 2015)
- Isbn
- 9781139107969
- Label
- Privacy, confidentiality, and health research
- Title
- Privacy, confidentiality, and health research
- Statement of responsibility
- William W. Lowrance
- Title variation
- Privacy, Confidentiality, & Health Research
- Language
- eng
- Summary
- The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward
- Cataloging source
- UkCbUP
- http://library.link/vocab/creatorDate
- 1943-
- http://library.link/vocab/creatorName
- Lowrance, William W.
- Index
- index present
- LC call number
- K3611.R43
- LC item number
- L69 2012
- Literary form
- non fiction
- Nature of contents
- dictionaries
- Series statement
- Cambridge bioethics and law
- Series volume
- 20
- http://library.link/vocab/subjectName
-
- Medical records
- Data protection
- Medicine
- Label
- Privacy, confidentiality, and health research, William W. Lowrance
- Note
- Title from publisher's bibliographic system (viewed on 05 Oct 2015)
- Carrier category
- online resource
- Carrier category code
-
- cr
- Carrier MARC source
- rdacarrier
- Content category
- text
- Content type code
-
- txt
- Content type MARC source
- rdacontent
- Extent
- 1 online resource (xiv, 188 pages)
- Form of item
- online
- Isbn
- 9781139107969
- Isbn Type
- (ebook)
- Media category
- computer
- Media MARC source
- rdamedia
- Media type code
-
- c
- Other physical details
- digital, PDF file(s)
- Specific material designation
- remote
- Label
- Privacy, confidentiality, and health research, William W. Lowrance
- Note
- Title from publisher's bibliographic system (viewed on 05 Oct 2015)
- Carrier category
- online resource
- Carrier category code
-
- cr
- Carrier MARC source
- rdacarrier
- Content category
- text
- Content type code
-
- txt
- Content type MARC source
- rdacontent
- Extent
- 1 online resource (xiv, 188 pages)
- Form of item
- online
- Isbn
- 9781139107969
- Isbn Type
- (ebook)
- Media category
- computer
- Media MARC source
- rdamedia
- Media type code
-
- c
- Other physical details
- digital, PDF file(s)
- Specific material designation
- remote
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<div class="citation" vocab="http://schema.org/"><i class="fa fa-external-link-square fa-fw"></i> Data from <span resource="http://link.law.upenn.edu/portal/Privacy-confidentiality-and-health-research/sbfJ343fJ0Y/" typeof="Book http://bibfra.me/vocab/lite/Item"><span property="name http://bibfra.me/vocab/lite/label"><a href="http://link.law.upenn.edu/portal/Privacy-confidentiality-and-health-research/sbfJ343fJ0Y/">Privacy, confidentiality, and health research, William W. Lowrance</a></span> - <span property="potentialAction" typeOf="OrganizeAction"><span property="agent" typeof="LibrarySystem http://library.link/vocab/LibrarySystem" resource="http://link.law.upenn.edu/"><span property="name http://bibfra.me/vocab/lite/label"><a property="url" href="http://link.law.upenn.edu/">Biddle Law Library - University of Pennsylvania Law School</a></span></span></span></span></div>
